well guy's here is what is going on right now with my boy we had a meeting with all of his dr's back here at home to talk about what happend out in philly when we where out their for testing . we also wanted to get an idea where they all where on this surgery. well the news was not good from them with what happend out their almost "code blue" the dr's told us that the surgery would put him at more risk then good they told us it would kill him not the surgery it self but the meds "put to sleep " they all feel the same way and when the dr's out their say it is all ok he will be fine and things happen and they want to go ahead with the testing no matter his safty the dr's are also wondering if he might have somthing else be couse the dissorder is pergresive and he should be loseing things not gaining things so we are going to get him re tested agin for the 3rd time and it is a hard choice me and my wife has to make for our son do we go with the surgery that might give him some more life and risk killing him or do we sit back and see what happens with his health. :cry: it is another heart breaking choice we have to make. i know we would make the right one. and i don't want to live the rest of my life out with that one thing running through my mind "what if " well guys i'll chat later got to go and clear my head "off to bowling a.k.a anger mangment"