well guys i am back after a leave i had to take some time off for my son. we had to take him out of state for pre surgery testing and while we where gone he had a b-day and got alot of good gifts from dr's and other pepole a local hobby shop gave my son a box of train stuff in o scale i put it together around his room and he loves it the dr's hated it looking down at their feet everytime they came into the room for they didn't hit it. the morning we came home the hospital set up a small trip for us me and my son where able to go and drive a set of gp 38-2 's in the local yard that brought back some good times an they gave him a jacket from the compeny and made him a conductor (for the ones who would like to know it was norfolk and southern). well guys time to get to work on my layout after i get up to date on here..
back at the gauge
- Thread starter scoobyloven
- Start date
Welcome back Scoob!!! Sounds like you made the best of things and made it a fun time for the boy. Best wishes to all of you.
Very glad to see you back,,, like others how did the tests go??
Keep us here at the family informed.. Ron..
Keep us here at the family informed.. Ron..
Hi Scooby,
hope the test showed good results. And I think it's great that your son even got some fun out of the situation. All the best for him!
Keep us informed about him, willya?
Ron
hope the test showed good results. And I think it's great that your son even got some fun out of the situation. All the best for him!
Keep us informed about him, willya?
Ron
well guys the test went good . and he is doing very good i took him out yesterday with me while i was getting some fine tuneing on my bowling game we had him up on the lane to bowl a game in his wheelchair and he bowled a 122 with help pushing the ball down the ramp. we are going back out to philly the frist week of jan to meet with the surgery dr's we know it is no cure for what he has but it is hope. as for what he has it is called "canavan's diesease" and we are taking alot of pics i must have around 200-300 of just him and still hiting a wall when it comes to do a foundraiser for him but on another note i was contacted bye another family that had a good web site for canavan's and some hacker got on their and done some very bad things. but all is good and he is doing very well waiting for the snow to go sleding
Thanks
Hi Scoobyloven, We thank you for the update, and would really like to see a picture of your son, If that is O K with you and of course the lad.
As we Hold your family up in Prayer, it is good to see him in our thoughts.
So glad the test are promissing my friend.
Our thoughts and Love and Prayers go out to you.
Hi Scoobyloven, We thank you for the update, and would really like to see a picture of your son, If that is O K with you and of course the lad.
As we Hold your family up in Prayer, it is good to see him in our thoughts.
So glad the test are promissing my friend.
Our thoughts and Love and Prayers go out to you.
Too cute!! That's a great pic! 
glad to hear that there's still hope. Best wishes for all of you!!!
glad to hear that there's still hope. Best wishes for all of you!!! 
:thumb:Welcome both you and your son back on board. He is a beartiful youngster. It is gratifying to hear the hospital and NS have gone out of their way for him. These extra happy moments can be as good a therapy the medications. As long as he has good things like that to look forward to, he'll have the will to fight the disease.
Good luck and God bless both of you.
Good luck and God bless both of you.